7 Tevet, 5778
As I hope you already know from this blog and the book it's about, I strongly recommend that patients and the people responsible for them behave as their own best advocates.
EMPOWER Yourself to Cope with a Medical Challenge has several lessons about that (page 3 and the Action Alert chapter which comes later). Here's another source of help for you. It comes from an experience as recent as last night:
Here we go:
Contact private medical care agencies and ask for advice.
She: oncology patient, already did chemo and an immunotherapy trial, she is now trying to get appointments with 2 drs in ohio and alabama. forms getting lost, etc.
Me: In which state does the patient reside?
Me: Call your local Family Services organization ASAP, explain exactly what is needed and insist on getting THE social worker capable of handling the tasks involved. Contact Hopkins general info line, express the needs to be met and ask for advice on how to accomplish that.
She: [the patient] has been treated at [Johns] Hopkins up until now.
Me: Remain fact-oriented. No emotions, no threats. That turns people off even though they're experts in their industry. Fact them to pieces until the patient gets what is needed.
What's the name of the Alabama facility? I might have connections useful for your relative.
She: i just found out, she got the alabama appt - next tuesday. Ohio seems to be the issue. These are her last 2 options.
Me: Contact Ohio department of health and ask for the necessary human and medical resources.
Let the patient know that it is VERY SMART to pay the nominal fee to buy a COMPLETE copy of her medical records so that she can show them to consultants. She should give out photocopies ONLY, never the original papers in her hands.
Me: ... Let me know the type of cancer involved.
BTW EMPOWER Yourself to Cope with a Medical Challenge lists fab tips and tricks for coping with illness and messy amounts of paperwork. It even clues you in to worldwide charitable organizations willing to pay for some or all of a patient's specific medical care. All you have to do is to ask for the help.
Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge.
Face Your Medical Problems with Dignity. Face Your Future with Optimism.
Fill your time and efforts with innovative problem-solving techniques.